This is going to be a long one and I am sorry, but I figured you need the backstory to understand what might happen.
I have not had to deal with this with the patient being my sibling, but it is my Mom. We saw her going downhill and thought we could see how she dealt with being in a home for some respite care. Up to this point, we have not had a supportive doctor. She would ask her 3 or 4 questions and say everything was fine. She would, however, talk to my sister or I and not my Mother. This was not setting well with us so we requested moving her to the doctor we both have. As soon as our doctor saw her she requested Mom see a neurologist. After that testing and visit they told us that she was the beginning of Dementia. At that point we had to opportunity to place her in respite care at a place we had been checking out. She was actually excited as we talked about it and helped pack. It was a personal care part of the home and it was horrible. She would call us, complaining and demanding we come and get her. I talked to the administrator and she assured me that things would get better and that she was doing well. On the third day I was on the phone with the administrator and my Mom walked in her office door yelling and telling her that she needed out of that place immediately. I was in shock because I had never heard her talk to anyone the way she talked the the admin and the language was nothing my Mom ever said. She was also in her pajamas with no robe or slippers. My siblings and I had a meeting and knew if we brought her home that day we would not have to pay for the rest of the respite we had planned for her. We spoke to her and decided to bring her home and arrange for some care at home.
That lasted for about a day or two and we knew it was not going to work. She was calling us one after another and not remembering who or who she had already talked to. I had to go to an appt and my sister had one the same time. We were both out of town and could not interrupt our meetings with calls. We arranged the care give to arrive an hour early. I called her before we left and reminded her that My sister and I were going out of town and could not answer her calls. We came out of the meeting and when I turned the phone back on it was full of missed calls and messages. It turned out that she started calling relatives and her caregiver and telling them she had no idea where we were or why we were not answering. She told them she was home alone with no food and was afraid. When we got to her house I was able to straighten things out with everyone and after my sister and I agreed we needed to do something.
We had a appointment at the doctor later in the week and she agreed that Mom was progressing quickly. She told Mom that she needed to give us her car keys and to eat and take her medicine. Lucky for us the home called and had an opening in Assisted Living Memory Care. Within 2 weeks of that date we had it arranged for her to move the AL-MC. The doctor was wonderful explaining things to us like not to visit for at least the first week to give her time to get use to the schedule and how things are there. We made sure to take things with her to make the move easier like furniture, pictures, her favorite photo album and things like that.
She moved in 2 months ago and things are going so much better now. It was hard at first because she didn't think that she needed to be there. She soon made friends, actually has 4 people in her area that went to school with her, 1 who was a neighbor, 1 from church and even knew 2 of the care givers. In the beginning she constantly asked when she was going home, where her car was and where her cat was. We always answer vaguely and it did work. Finally at around a month and a half the questions changed. No longer asking about the house and the cat. We heard more about the things they were doing in the home and about her new friends. It is wonderful to be able to talk and share with her. To bring her things she wants and needs. I feel like I have my Mom back.
I had to remind my siblings over the weeks that she was safe, eating and taking her medicine. I took her to a checkup with her doctor last week and she had gained weight, her blood pressure was very good and physically she was doing great. I was so happy I took her out for a celebratory lunch. It is very hard and you have to keep reminding me why you are placing her in a home. I am getting great reports from the employees. The other day when I arrived the one told me "Your Mom is a trip". I wondered what she did. Ended up the woman who we worried about eating had eaten extra at breakfast the day before and an almost double lunch. I could tell that looking at her she was feeling better, doing better and happier.
I know this was long, but if you hung in until the end remember that the changes do not happen quickly. Be patient and consistant. Hopefully you will have a good doctor who can help you too. I also joined two groups on Facebook that have helped me with questions too. They are
Dementia - The Journey - Support Group and
Memory People