New proposal raises privacy concerns—Here’s what you need to know.
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A new controversy is casting a shadow over the privacy of millions.
This state’s latest move to collect extensive prescription data from its citizens has sparked a fiery debate about privacy rights and the role of government oversight.
We understand the importance of staying informed about issues that could impact your personal information, so let's unpack what's happening in Florida and what it means for you.
Florida’s insurance regulator is under scrutiny amid growing concerns about patient privacy and government overreach after requesting personal and prescription data from potentially millions of individuals.
The Florida Office of Insurance Regulation (OIR) has made a bold request to pharmacy benefit managers (PBMs) for personal and prescription information.
Shiloh Elliott, spokesperson for the OIR said that this was part of the “normal course of business in the examination process” of PBMs.
PBMs are the intermediaries that negotiate between pharmacies, insurers, employers, and drug manufacturers, playing a significant role in determining which medications are covered and at what cost.

The OIR's request includes sensitive details like names, birth dates, and the specifics of individuals' prescriptions. This data dive is part of a broader initiative to scrutinize PBMs, which have been under the microscope for allegedly inflating costs for patients and employers.
The Prescription Drug Reform Act, signed by Governor Ron DeSantis in May 2023, aims to bring transparency to prescription drug pricing and hold these “pharmaceutical middlemen” accountable.
The request for such detailed information has raised red flags for many. Critics argue that this level of government access to private health details is a step too far.
Michael Jackson, a retired pharmacist and former CEO of the Florida Pharmacy Association, voiced a sentiment shared by many: consumers don't want the government to have access to their private details.
Also read: Is your health harmed? Find out if you’re one of the million affected by the latest massive data breach!
On the flip side, the OIR insists that the information gathered will not be publicly disclosed and is part of their commitment to consumer protection.
Amidst the debate, there's an undercurrent of concern about how this data could be used.
Rosa Novo, the administrative benefits director for Miami-Dade County Public Schools, told The New York Times that while she supports efforts to reduce prescription costs, she believes her doctor should be the only one with access to her personal details and medication history.
The American Benefits Council, a Washington, DC-based organization representing financial institutions and large companies, also urged the Office of Insurance Regulation to withdraw its request for prescription data. In its letter, the group stated that the request “impermissibly violates the health privacy and security of millions of Floridians,” though it did not specify the reasons behind this claim.
Meanwhile, Elliott previously told Bloomberg and The New York Times that opposition to the data request is coming from those who "do not want to be regulated or have any oversight in their industry."
In 2023, nearly 80 percent of all prescription claims in the U.S. were processed by pharmacy benefit managers (PBMs) owned by just three companies: CVS Health, Cigna, and UnitedHealth Group.
Sharona Hoffman, a health law and privacy expert at Case Western Reserve University, speculated that Florida officials could potentially use the data to target doctors providing illegal abortion services or transgender treatments. However, there is no evidence to support this claim.
Source: STAT / Youtube.
As the debate rages on, the OIR maintains that its actions are in the best interest of Floridians.
The outcome of this push for data will likely have far-reaching implications, not just for Florida, but as a precedent for how personal health information is handled nationwide.
You might be interested: This pharmacy tip slashed this woman's prescription bill to $45—find out how!
Have you ever had concerns about your data privacy? What are your thoughts on the balance between government oversight and personal privacy? Share your stories and opinions in the comments below!
This state’s latest move to collect extensive prescription data from its citizens has sparked a fiery debate about privacy rights and the role of government oversight.
We understand the importance of staying informed about issues that could impact your personal information, so let's unpack what's happening in Florida and what it means for you.
Florida’s insurance regulator is under scrutiny amid growing concerns about patient privacy and government overreach after requesting personal and prescription data from potentially millions of individuals.
The Florida Office of Insurance Regulation (OIR) has made a bold request to pharmacy benefit managers (PBMs) for personal and prescription information.
Shiloh Elliott, spokesperson for the OIR said that this was part of the “normal course of business in the examination process” of PBMs.
PBMs are the intermediaries that negotiate between pharmacies, insurers, employers, and drug manufacturers, playing a significant role in determining which medications are covered and at what cost.

The Florida Office of Insurance Regulation (OIR) has requested personal and prescription data from pharmacy benefit managers (PBMs) to investigate their practices. Image source: PhRMA / Youtube.
The OIR's request includes sensitive details like names, birth dates, and the specifics of individuals' prescriptions. This data dive is part of a broader initiative to scrutinize PBMs, which have been under the microscope for allegedly inflating costs for patients and employers.
The Prescription Drug Reform Act, signed by Governor Ron DeSantis in May 2023, aims to bring transparency to prescription drug pricing and hold these “pharmaceutical middlemen” accountable.
The request for such detailed information has raised red flags for many. Critics argue that this level of government access to private health details is a step too far.
Michael Jackson, a retired pharmacist and former CEO of the Florida Pharmacy Association, voiced a sentiment shared by many: consumers don't want the government to have access to their private details.
Also read: Is your health harmed? Find out if you’re one of the million affected by the latest massive data breach!
On the flip side, the OIR insists that the information gathered will not be publicly disclosed and is part of their commitment to consumer protection.
Amidst the debate, there's an undercurrent of concern about how this data could be used.
Rosa Novo, the administrative benefits director for Miami-Dade County Public Schools, told The New York Times that while she supports efforts to reduce prescription costs, she believes her doctor should be the only one with access to her personal details and medication history.
The American Benefits Council, a Washington, DC-based organization representing financial institutions and large companies, also urged the Office of Insurance Regulation to withdraw its request for prescription data. In its letter, the group stated that the request “impermissibly violates the health privacy and security of millions of Floridians,” though it did not specify the reasons behind this claim.
Meanwhile, Elliott previously told Bloomberg and The New York Times that opposition to the data request is coming from those who "do not want to be regulated or have any oversight in their industry."
In 2023, nearly 80 percent of all prescription claims in the U.S. were processed by pharmacy benefit managers (PBMs) owned by just three companies: CVS Health, Cigna, and UnitedHealth Group.
Sharona Hoffman, a health law and privacy expert at Case Western Reserve University, speculated that Florida officials could potentially use the data to target doctors providing illegal abortion services or transgender treatments. However, there is no evidence to support this claim.
Source: STAT / Youtube.
As the debate rages on, the OIR maintains that its actions are in the best interest of Floridians.
The outcome of this push for data will likely have far-reaching implications, not just for Florida, but as a precedent for how personal health information is handled nationwide.
You might be interested: This pharmacy tip slashed this woman's prescription bill to $45—find out how!
Key Takeaways
- The Florida Office of Insurance Regulation (OIR) has requested personal and prescription data from pharmacy benefit managers (PBMs) to investigate their practices.
- There are widespread concerns over patient privacy and government overreach in response to the OIR's data request.
- PBMs are under scrutiny for alleged practices that may drive up costs for patients and employers while they liaise between drug manufacturers, pharmacies, insurance companies, and employers.
- The data collection is part of the enforcement of the Prescription Drug Reform Act, aimed at promoting transparency and accountability in prescription drug pricing.
Have you ever had concerns about your data privacy? What are your thoughts on the balance between government oversight and personal privacy? Share your stories and opinions in the comments below!